Frustrated

Spinal tap last Thursday opening pressure 39, normal person about 11. Neuro appointment today upped the meds again, now appointments with neurosurgeon, etc. Looks like we are just in the beginning of many more expensive appointments and testing to come. They are leaning towards surgery but want to use that as a last resort so more testing over the next few months. I am frustrated to say the least. I would like to wake up at least one morning a week without a headache and get home from work without being irritable and exhausted.